I am a 39-year-old TMJD sufferer living in Sydney, Australia. I was first diagnosed with TMJD in approximately 2003 after being concerned about my frequent headaches in the temple region.
I suffered with debilitating headaches as a child and then from adolescence through to adulthood. When I was about six years old, I fell from the top of a 20-foot waterfall onto rocks below. I now wonder if that or other childhood injuries were a contributing factor to my TMD.
Incidentally I was a teeth grinder when I was young and I believe I still clench at night. In 2002, I had all of my wisdom teeth removed, thinking that was the cause of my pain. Surprisingly my dentist at the time didn't even suggest I had a TMD. With debilitating migraine-style headaches continuing, I was determined to find out more. I eventually had a CAT scan to remove the possibility of tumors and it was following this that my TMD condition was diagnosed. Dental treatment led me to trying a mouthguard; however, I found this to be uncomfortable and ineffective.
I eventually saw a maxillofacial specialist in 2003. This visit provided me with an explanation for my condition and lead to physiotherapy treatment that initially tried to treat the condition through massage and jaw exercises. This didn't really work for me as it wasn't really helping my condition. I then just decided to live with the condition. When pain does occur I resort to long showers with pulsating water (or alternatively baths); however, these only provide temporary relief. I use paracetamol for pain relief and sometimes take Mersyndol to help with a sound night's sleep. I'm not sure that the paracetamol is really that effective.
Moving onto early 2008 I set about shedding some excess weight. To the end of 2010 I've lost 40kg (88lb) through a significant amount of exercise. I now hike regularly and cycled 4000km last year! With work getting quite busy, I haven't made the time for this level of regular exercise. On 18 July 2011 I had a debilitating migraine caused by my TMD. This lead me to read more about TMD on Wikipedia http://en.wikipedia.org/wiki/Temporomandibular_joint_disorder ):
Regular exercise such as running for 20 minutes 3 times a week, is extremely efficient in alleviating TMD brought about through stress-induced bruxism. Exercise essentially burns away the chemicals like cortisol and norepinephrine that cause stress so the unconscious mind no longer feels the need to relieve its stress through jaw-clenching.
After reading that, I recalled that I had periods of two to three months in 2010 where I didn't suffer from a TMJD-induced headache. Light bulb! I needed to get out and exercise again!
Now that I'm motivated I'm aiming to cycle a minimum of 60km per week. This is about 2.5hrs of exercise per week, mainly by going for 20km rides after work. I'm also going to try and hike most weekends. Ttypically these are 4-8 hrs duration.
I'm also going to start using the iManage Migraine app ( http://itunes.apple.com/app/imanage-migraine/id340537912?mt=8 ) on my iPhone to log details of pain episodes. That, together with my exercise diaries will hopefully give me some form of confirmation that regular exercise is the best treatment for my TMD.
That's my story. I hope that it's useful in some way. I'm happy for you to share the above without any identifying information.
I'm glad that I found your organization via Facebook as there aren't any TMD-focused community groups/organizations that I could find in Australia.
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