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Statement by NIDCR Acting Director on the National Academies of Sciences, Engineering, and Medicine Report on Temporomandibular Joint Disorders

I am pleased to announce the release of the National Academies of Sciences, Engineering, and Medicine (NASEM) report, Temporomandibular Disorders: Priorities for Research and Care. As underscored by the comprehensive report, temporomandibular joint disorders (TMJDs) are a diverse and still poorly understood set of complex, painful conditions affecting the jaw muscles and tissues, temporomandibular joints, and associated nerves. Clearly, there is much more to be understood, and these conditions continue to confound medical and dental health care providers and researchers.

New Report on Temporomandibular Disorders: Priorities for Research and Care

With support from the Office of the Director of the National Institutes of Health and the National Institute of Dental and Craniofacial Research, the National Academies of Sciences, Engineering, and Medicine appointed a committee to address the current state of knowledge regarding TMD research, education and training, safety and efficacy of clinical treatments, and associated burden and costs.

Have you seen the film Dark Waters?

The Film. Dark Waters is about attorney Robert Billott's real-life 20 year legal battle against DuPont chemical for releasing toxic waste - perfluorooctanoic acid, or PFOA - into Parkersburg, West Virginia's water supply, with devastating health effects on the townspeople and livestock. PFOA, also known as C8, is a man-made chemical. It is used in the process of making Teflon and similar chemicals known as fluorotelomers.

Online TMD Diet Diary Research Project

Online TMD Diet Diary Research Project The TMJ Association received the following request from Professor Justin Durham and his research team at Newcastle University. We encourage TMJ patients to participate in this project as it is an under researched

Drug Induced Bruxism

The authors of this article state that orofacial movement disorders (bruxism) are treated typically by dental professionals and not by those specialists (neurologists) researching and treating the other movement disorders (Parkinson's disease, Huntington's disease, tremors, etc.). Again, this is more evidence of the complexity of TMD and the need for multidisciplinary research and treatment in TMD.

Help Give TMJ Patients a Voice

  • Jan 7, 2016

My name is Jennifer Feldman, and I have suffered from TMJ dysfunction since age ten when I was in a car accident. All of my memories are attached to my "condition." I remember sitting in waiting rooms for endless hours forming friendships with other patients who shared my pain. My family spent more than one birthday singing next to my hospital bed while I tried to blow out a candle standing up in a jello cup, working with pharmacies to concoct inventive ways to push pain meds through my wired jaws, battling with insurance companies for pre-authorizations, and trying to convalesce while fighting for reimbursement. Like many patients who have chased after a cure for many years, I have undergone 18 surgeries.  In 2015 alone, I had 2 bilateral rib graft surgeries and a sagittal split osteotomy.

Ten years ago, I enrolled in law school with a goal of becoming a patient's rights advocate, but my studies were interrupted by multiple surgeries. I managed to graduate with my class, but the uncertainty of my health made it impossible to tackle the healthcare system and take care of myself at the same time. I am totally and permanently disabled. The sad truth is that I can't be that patient advocate, which is exactly why I am so grateful for the work that the TMJ Association (TMJA) does to fight for better research and advocate on my behalf.

If not for the hard work and relentless dedication to research based solutions, we would continue to face a world of TMJ care that mimics the Wild Wild West. I am so thankful for the work that Terrie Cowley and her colleagues do to raise awareness on Capitol Hill, at the NIH, FDA, and other government agencies. The community of patients constantly seeking verified information on the subject of TMJ go to the TMJA for comprehensive and credible research updates.

When I can't speak because I am in too much pain or my jaw is literally wired shut, the TMJA is my voice. If the TMJA wasn't fighting for us, who would?
 
It is the time of year that we give thanks and express our gratitude to those who, like the TMJA, work tirelessly on our behalf. I ask you to join me in sending a contribution to The TMJ Association. Changing the face of TMJ is not easy, but working together, we can make change happen.

Jennifer

The TMJ Association by Terrie Cowley

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