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Patients in Los Angeles or New York City Needed for Clinical Study - Comparative Study of Women Considering or Currently Receiving Botox© Injections for TMJ Pain

Are you a woman with "TMJ" pain in facial muscles, who has either: a. recently had Botox© injections for your pain or b. not had Botox© for your pain but has thought about such treatment? If either is true for you, you may qualify for an observational research study centrally administered by the NYU College of Dentistry. It is funded by the National Institutes of Health (NIH). The purpose of this study is to understand potential health risks that may be caused by treating "TMJ pain" with Botox© injections.

Patients Front and Center at the 2018 TMJ Patient-Led RoundTable

It is still all too fresh in the minds of many patients. Fifty years ago, between the 1970s and 1980s, some 10,000 TMJ patients received Vitek jaw implant devices.

Funding Opportunities now available for the NIH Common Fund’s Acute to Chronic Pain Signatures program

The NIH Common Fund's Acute to Chronic Pain Signatures program aims to understand the biological characteristics underlying the transition from acute to chronic pain and what makes some people susceptible and others resilient to the development of chronic pain.

Opportunity to Voice Your Opinion: U.S. Government Officials Want To Hear from Patients with Pain

FDA Public Meeting on Patient-Focused Drug Development for Chronic Pain On July 9, 2018, FDA hosted a public meeting on Patient-Focused Drug Development for Chronic Pain. https://www.federalregister.gov/documents/2018/05/15/2018-10284/patient-focused-

Consider Including the TMJA in Your Financial Planning

We were recently contacted by Tom P. who informed us that he was including The TMJ Association (TMJA), in his financial planning. Tom wrote the following for us to share with our readers:

Brittani's Story

  • May 13, 2015

My TMJ problems started when I was 13 years old. We're not 100% sure what started it, but my doctors think it was a combination of me already having Juvenile rheumatoid arthritis and the fact I had my fourth open heart surgery and I was intubated for a long amount of time.
 
After the surgery my jaw started clicking and it started to hurt a lot. About three months later, I was back to school, eating lunch with my friends and my jaw locked open. I started freaking out, my friends rushed me to the school nurse and she drove me to the ER. This would soon become my life.
 
From the ages of 13 to 17 my jaw locked open about 300 times. A part of my jaw bone formed a chip and when it would lock, it would lock right into the chip. I would have to be sedated at the ER each time it would lock. My head was wrapped with Co-flex [flexible bandages] days after, just to keep it in place. Off and on it would get so bad I had to be home-bound, because I was going to the ER so often and the pain was so bad. I was on Vicodin and a muscle relaxer.
 
I've had my mouth wired shut two times. I've had both sides shaved down twice and then my most recent surgery was three years ago when implants were put into each side. They worked well for three years; but as of the past six weeks, my implant on the right side is now moving.
 
I live in Illinois and, as of July 1st, dental isn't covered either by Medicare or Medicaid. Everything I ever had with my TMD was always covered, which I'm thankful for, but now I'm worried what’s going to happen. I don't want to know what the pain is like when my jaw locks with the implant still in, and I don't agree that TMD is dental. I have a heart and lung illness− one lung and a long list of issues with that. Even with all of this, TMD is the most annoying.
 
I didn't do a lot from the ages of 13 to17, because I was afraid of having fun. I'd laugh and it would lock. Now it is starting again and my doctor won't give me any good pain meds, other than Advil. I guess she doesn't get that a titanium implant moving inside my jaw is quite painful. Eating anything other than soft foods and soup is out of the question. I'm hoping so much I can get this fixed ASAP!

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